Tuesday, 17 May 2011


After spending the past week emailing photos to the Children's Hospital so they could monitor Violet's ulcer without us coming in all the time. This morning we went to have Violet's ulcer checked as the healing has come to a standstill again and we were worried about the lack of slough coming out considering there was still alot in there and not much exudate on the dressings. Hospital were also concerned as we were about the hard area at the bottom of the wound that looked like it may need debriding.

They mentioned on the phone yesterday they were going to try seaweed dressings, but on arrival there today, they didn't mention these and instead decided on using Acticoat Silver Dressings.

They are using Acticoat 7 which can stay on for 7 days but they want me to check it on Friday to see how it's looking and email them a photo.

They told me I wouldn't need to wet the dressing down as it was a 7 day dressing, but I have big doubts it will stay moist until Friday when they have put on the silver dressing, then allevyn foam and then hyperfix.

From all I have been told about Acticoat by other people I know that have used it is that it needs to be wet 3 x per day.

They didn't decide on debriding it today as they feel the hard section should come away on it's own eventually.

She does now have Cellulitis as suspected last Wednesday and has started AB's again today.

They dressed the ulcer and then after realised they had not swabbed the ulcer and had to remove dressing swab and re-dress!

Trouble is they used saline both these times to activate the silver dressing which apparently when I got home and read more about the dressings online clearly states DO NOT USE SALINE, only use sterile water. Apparently the chloride in the saline does not allow activation of the silver particles.

I rang and advised the CNC one of which is trained in wound management that they had used the incorrect water on it.

So when Violet got home from school I had to re-dress it again using the appropriate water, which felt like a day wasted as the dressing she had on was not doing anything! In relation to my previous comment about it not being moist enough by Friday still, on taking it off this afternoon to re-dress, there was hardly any moisture left in the dressing!

Here is today's photo.


Missy said...


Have emailed you some info re the Acticoat Silver Dressings.

It is lucky that Violet has you watching over her care.


Alison said...

Wow - what an ongoing drama.

Anonymous said...

It's a shame they have not suggested A-cell for her sore.It is a new thing. It is actually Pig Bladder and it is to help regenerate cells.

There's a case study on a young girl, who after 1yr her sore had not healed so they tried this and saw a huge improvement.

Jenna said...

Hi Violet
My name is Jenna and I came across your site. U are courageous, strong, determined, and courageous fighter. U are a brave warrior, Smilen Champ, and an Inspirational Hero.
I was born with a rare life threatening disease.