Monday, 14 February 2011

Neurologist Appointment

This afternoon Violet had her Neurologist appointment.

Pop a bottle of champers or whatever you all drink out there, as it has now been 1 YEAR since Violet's last seizure and given that all hers end up status epilepticus, that is so damn good to hear Epilim has made the world of difference for her! After 3 years of her having epilepsy, it's great to have them finally under control!

He is concerned about her daily headaches and will be talking to Violet's Neurosurgeon to see what his thoughts are on these. It may come down to medicating her daily with something to help them instead of constantly using Panadol or Nurofen...mainly Nurofen as the Panadol does nothing to touch it. He is also wondering whether ICP monitoring would be worthwhile to see if she does have any extra raised intracranial pressure on top of the excessive pressure she has regardless of her shunt, but I would prefer not to as it is an invasive procedure that may cause more problems.

So we await to hear their decision on what the next step will be.

6 comments:

Alison said...

Great news about no seizures for a whole year!!

I hope they can sort out the headaches - as you well know that is no fun at all :(

Good luck for the surgery coming up. Is it this Friday??

Sarah said...

Thanks Alison. Surgery is 1 week tomorrow (22nd)

Hope you are still standing after all your tests today.

Missy said...

Woo hoo! Will say a big congrats on the 1 year anniversary of NO seizures. It is so good that the medication is working.

I hope they can sort out her headaches very soon.

Bug hugsxxxx

Mazzmerise said...

that is great News about no seizures, and I hope they can sort out the headaches too ♥

thinking of you for the surgery soon ♥

Dianne said...

Congrats on the year of being seizure free! Great news.

Bummer about the headaches. I hope they are able to find something to help :-(.

Thinking of you both in the lead up to surgery!
xo

Belinda said...

Champers popped! Great to hear! Hope they can sort out headaches. Xx