Tuesday, 18 January 2011

Neurosurgeon Appointment

Today was Violet's Neurosurgical review.

Looking at her CT Scan from October and feeling her shunt reservoir today, he is quite confident that her shunt is functioning, which is always great to hear!

He showed me today how to depress the shunt reservoir and check that it fills at the right rate, not that I would want to be doing it often, but good to be shown how to do this properly if need be. Felt quite bizarre!

All being well she will be reviewed in 1 year.

Part of my appointment today involved a little mission from a fellow hydro mum in the U.S who started a website after she lost her son Gabriel to Hydrocephalus in 2005. This site is called Gabriel's Life and she has been running a sticker campaign.

GL Sticker

Help us get a Gabriel’s Life Sticker on the set of “Grey’s Anatomy.”
Donate to Gabriel’s Life Sticker Campaign (www.gabrielslife.org) for $12. We will send you two stickers. Keep one and give the other to your neurosurgeon, take a picture of them with the sticker and email it Gabriel’s Life, we will post it to our site. A third sticker will be sent to a staff or cast member of ABC’s “Grey’s Anatomy” along with a copy of your hydrocephalus story as it is posted on the Gabriel’s Life site.

Why are we doing this?
We want more awareness of hydrocephalus within our community and the general public. This campaign will create opportunities for awareness on local and national levels and encourage the hydrocephalus community to think about solving the challenges of hydrocephalus in a new way.

Why does it make sense for a ABC and “Grey’s Anatomy” to care about hydrocephalus? Why should a Gabriel’s Life sticker appear on a prime time hospital television series?
The main character on ABC’s “Grey’s Anatomy” is a neurosurgeon, Derrick Shepherd, played by Patrick Dempsey. Because of the frequent failure of shunts (the dominant treatment for hydrocephalus) and the need for them to be revised, surgeries related to hydrocephalus and shunts are considered the “bread and butter” of neurosurgery. Because the Dempsey character would be very familiar with hydrocephalus (hydrocephalus has been included in two episodes) it makes sense that he would also know and support the mission on Gabriel’s Life. He would have and display a Gabriel’s Life sticker, on his locker, or laptop or desk. We are not asking that a storyline be created around Gabriel’s Life, we simply want the logo to be treated like a product placement on the set.

So, my mission was to give one of these stickers to Violet's Neurosurgeon in hope he would let me take a photo of him with the sticker and post it on Gabriel's Life Website all in aid of the sticker campaign but he opted instead to display the sticker in the hospital. He will be displaying it in the Neurology Dept which is still fantastic!

Instead, I will take a photo of the sticker in the Neurology Dept in hope that it may still help the campaign...


Alison said...

I'm glad you don't have to go back for a year.

I'll keep an eye out for those stickers on Grey's...I'm addicted to that show and loving watching the reruns on foxtel at the moment.

The Henrys said...

Great news about the shunt! It's wonderful that as long as everything is good that she doesn't have to go back for a year!

It would be amazing if Gabriel's sticker could be on Grey's!! I'll spread the word...

April said...

That would be amazing to see the sticker on TV! I'm so glad her shunt looks good! Hooray!

Ally {mtm} said...

Great news about Violet's shunt!