Her physio from the hospital also met me in the clinic and immediately noticed Violet's increased difficulty in walking, both with and without her AFO.
My concern is that it is still 4 months until her surgery and I can only see her going downhill further and spending the next 4 months permanently in the wheelchair while waiting for the surgery.
The surgeon agreed she has definitely worsened since he last saw her in July. Her last Botox was only almost 3 months ago. Her heel is not sitting in her AFO anymore, it is popping out from the tightness of her muscles. So he wants the Orthotists to pack to heel and hope this will at least help with the comfort part of her walking until surgery in February rolls around.
He said he can't really fit her in any sooner for surgery due to the fact he is already booked out.
He has put her on the cancellation list though, so if anyone else's child is sick or they can not make their surgery for some other reason, Violet may be able to be slotted in sooner than February....of course we may only have 2 days notice for this but we really have no choice as she has run out of options. Don't hold out much hope for this but at least we it place in case they do become available.
He also noted on her weight baring x-rays she had a few months ago that she has multiple fractures in her right foot. He is not sure when these are from but I just can't believe my poor little munchkin has probably been in so much pain and I haven't realised just how much pain. All this time I have assumed it was all CP related pain, not fracture related aswell!
We have her AFO adjustment on 3rd November.