Friday, 11 June 2010

Update

Placed our orders for Violet's Epi-Assist Epilepsy Monitor today and we should receive it on Wednesday. Will be such a relief to have it finally!

Have also placed order for her new Dobuggy which sadly still hasn't arrived in Australia just yet, hoping we don't have to wait too much longer though.

We have Violet's Pre-enrolment meeting at our local primary school on Wednesday, so I am very ready to let them know how I feel about her needs for funding! We also have an OT Site inspection at the school on Friday.

We have been in Melbourne the past 2 weeks and while we were there we got to catch up quickly for some lunch with Bron, Cooper and Pepper from Big Brother, Little Sister. Was lovely to finally meet them all in real life and Cooper and Pepper are an absolute delight. Or should I say Ninja Cooper!

We were in Melbourne as our 7 year old nephew sadly passed away from Leukemia (ALL ph+) after a long battle of 3 ½ years. We are all absolutely devastated. He was such a strong little man who is an example to us all for his courage and determination throughout his short life. We will miss him so much.

Here is a link to a tribute his favourite AFL Football team Carlton put on their website for him.

7 comments:

Alison said...

I am so jealous that you got to meet Bron and Cooper and Pepper!!

So sorry about your nephew. There are no words really.

Rosalie said...

Sarah,i am so sorry of your loss of your precious nephew.

That is great that you got meet up with Bron. Hope all goes well with the meetings.

Mazzmerise said...

Hugs to your family in this sad Time

thats great about catching up with bron and family,
Hope you get the funding needed for school too

Belinda said...

Sarah, my thoughts are with you with the loss of your nephew.

Wonderful you got to meet Bron, Cooper and Pepper.

Take care. xx.

Korin and Isabella said...

My heart goes out to you and your precious family. Our thoughts and prayers are with you.

n0thingbuteverything said...

Sarah, so sorry to hear of your nephew's passing ;-(. Sorry we didn't get to catch up too, but I am sure it was a busy, crazy time. It's fantastic that you got to meet Bron and the kids.

xo

April said...

Oh I am so sorry for your loss. You'll be in our prayers. Hope you are wrapped in love during this tender time.