I recently applied for some funding through ADHC to purchase an Epi-Assist Epilepsy Monitor/Alarm and a new Disability Stroller, as Violet's second hand Maclaren stroller is starting to seize up as it is after all 16 years old! Which is such a shame as it has all the accessories you can get for a Maclaren!
I only put the application in 1 month ago and I received a letter in the mail confirming the panel had discussed the application and it was approved!!! All I needed to do was accept that with a signature and give them my bank details so they can deposit the money for these purchases.
It will be fantastic when both of these items arrive. The Epilepsy monitor will help me sleep at least a little better. She had a few small seizures 2 weeks ago after weaning off the Tegretol and just being on the Epilim. They were thankfully only short lasting 1 minute which is alot different to her usual status epilepticus. Her med level check that was taken a few weeks ago was too low, so I rang her Neurologist and he has increased her dose, so hoping this helps control them a bit more.
As for her new stroller, I can't wait as the lack of safety on her Maclaren at the moment due to it's age is a worry. I am looking at purchasing a Dobuggy from Doability in Melbourne. They gave me a cheaper price over the phone than on the net. I know she is almost 5 and may sound weird to have her still in a stroller but she just hasn't got the stamina to be without it.
In other news:
Violet's MRI under GA of her legs will be on the 23rd June.