Heard back from Geneticist today to say Violet's organs all looked good from ultrasound on Friday her kidneys included. No Wilms Tumor and kidneys measuring the normal! So a big relief all is fine with her kidneys. They will continue to monitor them over the coming years.
She said her tummy had no tumors but she does have excessive fat in her abdominal wall consistent with lipomatosis, which just means localised fat overgrowth.
Vascular Specialist also rang me to say he has organised the surgeon to be available on the day of Violet's eye moulding and EUA to do the skin biopsy. He now just has to confirm with her Opthamologist and it will be all set for the 8th May.